Hi, my name is Joanne, I have a teenage son who had always had issues at school and was finally diagnosed as being on the Autism Spectrum just before leaving Primary School. In the process of trying to learn all I could about the condition I joined a local support group and we have since, with their support, been through the daunting process of applying for an EHCP.
The whole experience of school, transition, the EHCP process along with having a child in school with additional needs has not been wholly positive and at times I have been dismayed that the process does not always appear to put the child’s wellbeing at its centre. I therefore decided to put my name forward for StaffsPCF so that I could make a real difference to the futures of my own and other children in Staffordshire’s who have additional needs.
What drives me at the end of the day is a real passion to see all children, especially those with additional needs, achieving their goals and full potential in a caring and positive environment.
Hi! My name is Edel and I am a wife and mum to a five year old boy and three year old girl. Our three year old has a diagnosis of autism and global developmental delays. She is non verbal and a sensory seeker. She has a blood clotting condition and has difficulties with eating, and has an exceptional talent for hearing music and rhythm in everyday things, a love for Yakka Dee and enjoys hanging upside down any chance she can.
I was a teacher at secondary level for twelve years, and so during that time worked with many children with SEND and a variety of providers and support people connected to them. For the last couple of years I’ve began my own journey through the system as a parent of a child with SEND, and realise nothing can truly prepare you as a parent for the struggles and difficulties that present themselves in so many unexpected areas of everyday life.
I do believe however that my experiences in the education sector, and my experience on this pathway with my daughter, place me in a unique position to be able to have a positive impact on the systems and processes in place to support families of children and young people with SEND in our area. My background in understanding learning, targets, teaching, and developmental progression have helped me understand where strengths in current systems lie, as well as areas for development.I truly believe that working collaboratively with all agencies and support systems, and with the voice of the child and their family at the centre of all decisions, can lead to life-changing outcomes for those that need it most.
Hello, I am a Parent Carer to two school aged children with additional needs and live in the Lichfield District. I have a special interest in Autism, Attachment Disorder, Dyslexia and Therapeutic Parenting. I believe with the right support and access to services, all children including those with additional needs can unlock their potential and flourish a neurotypical world.‘
As parents we need knowledge and support to help us navigate life with our SEN children, and to give them the tools to enable them to not just survive but achieve great things. Being part of Staffordshire Parent Carer Forum means I can help to give all Parent Carers in Staffordshire a united voice to help shape the services our families need’.
Hi, my name is Deb and I am a SEND parent of two amazing boys, one of them has Autism.
I have real life experience of how our SEND children have to navigate around the NHS, mainstream Education, the LA and how hard it is for them to be accepted to fit in to ‘the norm’ and just letting you know we have all survived so far.
I joined the Staffs PCf to work together with this amazing group of like-minded parents and carers to try to take words like, ‘Battle’, ‘Fight’, and ‘misunderstood’ out of our lives for everyone and help turn it around to the words ‘listened to’, ‘understood’ and ‘accepted’ to make a brighter future for our wonderful unique children and their families.
Hi! My name is Lori and I’m a mum to two boys the youngest of the two was given a diagnosis of Autism at the age of 3 has problems around sensory processing and was non verbal until the age of 5.
We’ve been on quite a journey over the last few years and have been quite lucky in the support we have received on the most part, but it hasn’t always been easy and getting support can be quite challenging.
I joined the PCF to because im passionate about ensuring all families or children with SEND are given the same opportunities and support that is tailored to the child and family needs to make sure they have the best possible life!
I’m Rachel. My lovely and brilliant young son has Down syndrome. We have been lucky so far: he is in a really supportive mainstream primary school with an ECHP and the help of great teacher staff and a lovely teaching assistant. We came back to the UK quite recently having been living and working overseas. So I now really want work with the other parents and carers in this group to help create a constructive partnership with Local Authorities and make sure that all children and young people with SEND living in Staffordshire have the best possible support and can live their best lives.
StaffsPCF run under the umbrella of Support Staffordshire – a local voluntary sector organisation. Esther Bromley deals with our administrative tasks leaving us to deal with the strategic side of sharing parent views to service providers.